LooneyTech
Red Skull Member
- Joined
- May 19, 2020
- Member Number
- 281
- Messages
- 6
Some light chemo for some minor skin stuff seems to have lit it off.
I was getting thru things pretty well, but shit's getting ugly recently.
CT shows inflammation over large areas of the terminal ilieum, confirmed with an illeocolonscopy.
Doctors are doing what doctors do
... hiding behind big words, doing a lot of bloodwork and doing a lot of testing, but they sure as hell haven't kept me in the loop or explained things well.
They want to use some seriously nasty drugs to turn the immune system down, because they say it's the problem.
I seem to have pissed the doctor off when I asked why we can't just go after what the immune system is going after, and communication with them is now rather difficult.
I know I'm not very smart, but I've always felt that if you can't explain a topic to a five year old,you don't really understand it yourself.
I'm hoping some folks will share their experiences.
What works,and what didn't.
Thanks for sharing!
I was getting thru things pretty well, but shit's getting ugly recently.
CT shows inflammation over large areas of the terminal ilieum, confirmed with an illeocolonscopy.
Doctors are doing what doctors do
... hiding behind big words, doing a lot of bloodwork and doing a lot of testing, but they sure as hell haven't kept me in the loop or explained things well.
They want to use some seriously nasty drugs to turn the immune system down, because they say it's the problem.
I seem to have pissed the doctor off when I asked why we can't just go after what the immune system is going after, and communication with them is now rather difficult.
I know I'm not very smart, but I've always felt that if you can't explain a topic to a five year old,you don't really understand it yourself.
I'm hoping some folks will share their experiences.
What works,and what didn't.
Thanks for sharing!