Local 14 year old girl. That my wife knows. Of course Doctors up here have no idea why this happened.
gofundme Link
Juley-Anne suffered a neurological reaction to her 4th Covid Vaccination (Dec 2022) and Grade 9 School Vaccinations (Jan 2023) and has spent most of 2023 with her Autonomic Nervous System (ANS) stuck in Sympathetic overdrive, due to a diagnosis of POTS and Dysautonomia.
The ANS influences the function of internal organs — a control system that acts largely unconsciously regulating bodily functions such as Heart Rate, Digestion, Respiratory Rate, Digestion and Urination and Sexual Function. It is also the primary mechanism in charge of the Fight-or-Flight response (the stress response).
If the ANS gets stuck in Sympathetic Overdrive it can lead to a litany of symptoms such as: Migraines, Loss of Vision, Light Sensitivity, Brain Fog, Gastroparesis, Muscle weakness, TMJ, Irritable Bowel Syndrome, Tachycardia, Chronic Fatigue Syndrome, Anxiety, Hypertension, Reproductive Dysfunction, Fibromyalgia, and more.
Juley-Anne has spent
all of 2023 in and out of hospital, in chronic pain, fatigued and although she is on many wait lists at the fol: Vancouver Children’s Hospital, Stollery Hospital in Edmonton, Hamilton General Hospital in Ontario, she has yet to meet with a specialist in Canada.
She is being followed by her GP, and a Cardiologist and is seeing a Phsyiotherapist, and we are grateful for that, but she is barley “living” right now, she deserves better, and although we have Doctors in Canada who could help her, the wait list for the Specialists are long. They
cannot confirm she would be accepted into their practice this year!
She missed all classes in school January through April. She was able to participate one class per day in May and June. This was painful and exhausting. She tries to stay on top of her education via online learning but this is hard for her with her vision issues and brain fog. It is also extremely isolating. She deserves to live a little more normal.
She can no longer walk without a walker.
She can only be vertical for short distances and with support. She is dizzy always. She cannot take care of her self in the bathroom or the kitchen. She is full time frustrated in her now lack of ability.
Sometimes life is full of alternative routes, and while she waits to see a Canadian Dr she has chosen to work with a Team in USA.
Juley-Anne recently had a consultation with The Pots Treatment Centre in
Texas and they have
agreed to take her on as a Patient, treatment begins 25 July!!!
They will do a two week comprehensive program with the goal to regulate her ANS and thereby directly address the root cause of problem.
She will work intimately with a team of Doctors including: an Psychophysiologist, an Internal Medicine Doctor, a Clinical Health Psychologist and a Registered Dietician. They will study her closely, educate her and create a treatment plan tailored for her.